In order to sensitize the public to the rare form of childhood dementia that is NCL, the Foundation has introduced various forms of communication such as engaged organisations and implementation of fundraising events and the successful cooperation with (specialist) media and prominent supports from film and TV. Specialist congresses, symposiums and further platforms are actively used by the Foundation to inform. As a renowned information channel many media partners also help through reports and free adverts to increase awareness of the foundations work. In Downloads you can find further information about the NCL Foundation. It would also be greatly appreciated if you would support us in the fight against this fatal childhood dementia by reporting on the foundation in your media.

Contact Person

Dr. Frank Stehr 

Dr. Frank Stehr

Phone: +49 (0)40-69 666 74-10

Mobile:  +49 (0)178-3416057 


This German - English translation was done by the translators Tizzy Mann, Andrea Murphy, Kate Humby and Marcia Neff for the PerMondo initiative that involves providing free translations for NGOs. PerMondo is sponsored and run by the translation agency Mondo Agit.