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Neuronal Ceroid Lipofuscinosis is a rare disease. Only 700 children in Germany are affected. One in 100,000 new-borns has juvenile NCL - 15 new-borns per year.


As one of around 1,000 foundations in Hamburg the NCL foundation campaigns in the fight against the potentially fatal childhood dementia. A 'not-for-profit' organisation is defined in Section 52 Paragraph 1 of the Fiscal Code of Germany as “A corporation shall serve public-benefit purposes if its activity is dedicated to the altruistic advancement of the general public in material, spiritual or moral respects.”

The task of the foundation is summarised in Section 2 ‘Aims of the Foundation’ of our own constitution as ‘Theexclusiveand immediate purpose of the foundation is to supportresearch into the metabolic disorder Neuronal Ceroid Lipofuscinosis (hereafter NCL) in its juvenile form and other rare diseases and to promote the development of both conventional and alternative treatment methods for NCL andother rare diseases.’


The Senate Chancellery of Hamburg has recognised the not for profit status of the foundation. This is a requirement for getting tax deductions on donations.


For donations of more than 100 Euros all donors receive a receipt for tax purposes from the NCL foundation.

This German - English translation was done by the translators Tizzy Mann, Andrea Murphy, Kate Humby and Marcia Neff for the PerMondo initiative that involves providing free translations for NGOs. PerMondo is sponsored and run by the translation agency Mondo Agit.