Welcome to the homepage of NCL Foundation

We appreciate you take the time to learn more about the foundation and get to know us.

Since 2002, this foundation is committed to fight the rare and deadly childhood dementia NCL (Neuronal Ceroid Lipofuscinosis / Batten Disease). With the help of many supporters we are working on establishing a platform for research and exchange about NCL in order to provide the approximately 700 affected children in Germany and their families with the prospect of a targeted drug therapy and an approach for healing.






Tiziana Serio, Dr. Frank Stehr, Tiziana Serio, Dr. Herman van der Putten


We aim to inform the public and to proactively initiate research projects which are the essential basis for the development of a first application of drugs within the upcoming years. For this purpose NCL Foundation supports national and international NCL research projects with doctoral fellowships.


The foundation couldn´t accomplish this task without the generous commitment of all volunteers and donators who support our important work. Therefore we would like to thank all who are helping NCL Foundation with financial support and on-site assistance or with proactive media coverage.

We appreciate your commitment!

DZI Spendensiegel

NCL Foundation

IBAN: DE50 20050550 1059223030
Hamburger Sparkasse


More information about the DZI-Spendensiegel ...

Contact Person

Dr. Frank Stehr 

Dr. Frank Stehr

Phone: +49 (0)40-69 666 74-10

Mobile:  +49 (0)178-3416057 


This German - English translation was done by the translators Tizzy Mann, Andrea Murphy, Kate Humby and Marcia Neff for the PerMondo initiative that involves providing free translations for NGOs. PerMondo is sponsored and run by the translation agency Mondo Agit.